My Child has Osteogenisis Imperfecta and an Unbreakable Spirit
May 10, 2013 in Anecdotes, Children, Family, Health, Mothers, Parenting, Relationships, Stories
Imaging looking at your newborn baby. Their tiny lips their long figures That cute button nose. Now imagine being told to limit the amount of times you hold your baby. That every time you pick him up you need to carefully plan every aspect in handling him or you could seriously injure him. That’s what life is like with a baby born with Osteogenisis Imperfecta. Osteogenesis Imperfecta (OI, sometimes known as brittle bone disease, or “Lobstein syndrome”) is a congenital bone disorder. People with OI are born with defective connective tissue, or without the ability to make it, usually because of [...]
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